I’m less than a month away from entering triple digits of beating the terrible Topical Steroid Withdrawal!
On this past Monday, if I had any doubts about being in the second flare stage, all those doubts were erased. My legs were so tight and burning that it hurt to bend, hurt to walk, hurt to have clothing touch them, and the same with elbow creases. I had the “elephant skin” on my inner thighs as it was so dry. The oozing was back and was making my clothes stick to me. I had been thinking about signing up for an upcoming running race but on this day, all the activity I could do was gimp stiff-legged to the restroom and whine in pain to myself.
But, I was pretty optimistic with this flare, because after the last slow progressing flare, things got better and I had a day or two where I felt really great – tons of energy and barely thinking about my skin, so I knew that would be coming again one day. And the more I go through the flare cycle, the closer I am to being healed!
Friday I had a small milestone, it was the first time in WEEKS that I went to work without a scarf or high-necked top on to hide my neck. I did put concealer on it to help out a bit, but I realized that as long as someone wasn’t right up close, you could barely notice the fine flakes or the uneven color. Of course, then on the way home I got stuck in a 90 minute traffic jam, so I started itching at my neck and undid a bit of that progress. Oh well, I will get there!
Here are a couple pictures from the past week.